Primroses from me to Mum.
I was born on Primrose Day 1960 and these sweet little flowers are our link with each other.
I have not Blogged about what the family has been going through recently as this Blog has had to remain newsy and happy for my lovely Dad to keep in touch with what has been going on in our lives.
After Jessie died in October last year, Dad had a sudden and unexpected heart attack, my Mum's quick thinking and commonsense got him the medical assistance he needed and he was home within days. While he was in hospital they did tests and these highlighted that he had been living, unknown to him or any of us, with a rare and slow growing liver cancer.
Over the months since then with Mum's love and care he has managed to stay at home amongst his family while the cancer gathered speed and started to seriously impact on their lives. She has somehow managed without any of the usual help, due to an appalling series of failings on the part of the NHS, (she has had no help from Macmillan nurses, home visits or any respite care), she was told to fill in forms for Carers Allowance and was turned down, when she should have been advised to apply for Attendance Allowance, so has only had financial help for 2 weeks.
Yesterday after a small fall Dad was admitted to hospital and the Doctors decided to re-assess his medication, they realised how hard it has been for Mum and just how well she has done with her round the clock care, but now the time has come for them both to have complete rest. Dad is being transferred to a local hospice later on this morning and we should find out more news then.
You will understand why this Blog may go quiet or go completely off subject for a few days while I stay and help in any way I can. Lovely Hubby is holding the fort back at home, luckily our new home is nearer to where he works so he can dash back at lunchtime to let the dogs out briefly and check on the chickens.
Family and friends are rallying round and we are all supporting each other in any way we can. Our world is a strange one at the moment, but I know with help and prayers we will get through this. Thank you to those of you who do know about this (you know who you are) your good wishes and emails have really helped, especially over the last few days.
Thank you for your understanding.
Sue xx
After Jessie died in October last year, Dad had a sudden and unexpected heart attack, my Mum's quick thinking and commonsense got him the medical assistance he needed and he was home within days. While he was in hospital they did tests and these highlighted that he had been living, unknown to him or any of us, with a rare and slow growing liver cancer.
Over the months since then with Mum's love and care he has managed to stay at home amongst his family while the cancer gathered speed and started to seriously impact on their lives. She has somehow managed without any of the usual help, due to an appalling series of failings on the part of the NHS, (she has had no help from Macmillan nurses, home visits or any respite care), she was told to fill in forms for Carers Allowance and was turned down, when she should have been advised to apply for Attendance Allowance, so has only had financial help for 2 weeks.
Yesterday after a small fall Dad was admitted to hospital and the Doctors decided to re-assess his medication, they realised how hard it has been for Mum and just how well she has done with her round the clock care, but now the time has come for them both to have complete rest. Dad is being transferred to a local hospice later on this morning and we should find out more news then.
You will understand why this Blog may go quiet or go completely off subject for a few days while I stay and help in any way I can. Lovely Hubby is holding the fort back at home, luckily our new home is nearer to where he works so he can dash back at lunchtime to let the dogs out briefly and check on the chickens.
Family and friends are rallying round and we are all supporting each other in any way we can. Our world is a strange one at the moment, but I know with help and prayers we will get through this. Thank you to those of you who do know about this (you know who you are) your good wishes and emails have really helped, especially over the last few days.
Thank you for your understanding.
Sue xx
So sorry to hear what your family has been going through. And how annoying that they seem to have completely slipped through the system. I hope that now that the system has caught up with them they can receive the support both of them need. Keeping you all in my thoughts.
ReplyDeleteThinking of you all. Love and hearts. Julie xxx
ReplyDeleteHaving worked for the NHS for many years im afraid thats its the same old story, he who shouts loudest gets the most attention.Ashamed nurse, Daisy
ReplyDeleteOh Sue, that is hard on you all. My thoughts and love are with you xx
ReplyDeleteLove and huge hugs, Sue
ReplyDeletelove Sarah xxx
Hugs xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
ReplyDeleteThinking of you and happy to add your situation to my prayers
ReplyDeleteThinking of you and Your Family Sue.
ReplyDeleteTake care of yourself too x
Sue, I know how you are feeling...you and your family are in my prayers. Just being with your Mum will help you all, remember to take care of yourself too.
ReplyDeleteJane xx
Sending you blessings xxx
ReplyDeleteThoughts and prayers with you all
ReplyDeleteMay God bless you and keep you strong xx
I'm so sorry to hear your news. Best wishes and healing gentle hugs to you all xxx
ReplyDeleteThinking of you all, with love Heather X
ReplyDeletexxxxxxxxxxx
ReplyDeleteSorry to hear your news. Thinking of you all.
ReplyDeleteSue x
Thinking of you and your family at this difficult time. x
ReplyDeleteI'm sending you and your family a big hug and lots of love.
ReplyDeleteTwiggy x
Everything that others have said, Sue. Hugs, my thoughts are with you, and please take care of yourself as well as your mum.
ReplyDeleteRegards, Sooze x
Sue
ReplyDeleteNothing I can say to help - except my thoughts are with you - take care of yourself and all your lovely family xxxx
Dear Sue, I too know and remember how you are feeling. Sending love and hugs to you and all of your family.
ReplyDeleteAlison
Thinking all you all Sue and sending blessings x
ReplyDeletesaying a prayer for you and your family.
ReplyDeleteGill in Canada
Thinking of you and your family. It's a very difficult time.
ReplyDeleteAs a new reader here, I am sorry to hear what your Mum and Dad have been through. Hugs to you from afar and I hope each gets the support needed.
ReplyDeleteYour family are in my prayers Sue.
ReplyDeleteJak x
Thank you everyone.
ReplyDeleteI'm passing all your comments on to my Mum who is finding them really comforting, to know you all care enough to take the time to comment and email is lovely.
Thank you, you are all so very special to me.
Sue xx
Oh sue how awful, least they are finally getting the help they need
ReplyDeleteI will be thinking of you all and sending positive vibes.
Thinking of you and your family Sue xx
ReplyDeleteSo sad to read this.
ReplyDeleteHope you get the support you need.
Dear Sue,
ReplyDeleteSo sorry to hear your news. My thoughts and prayers will be with you all at his time. Unfortunately i have some idea of what you are going through after my Dad's illness last year. Look after yourselves
Hi Sue, I'm so sorry to hear of all that has been happening, and just wanted you to know i was thinking of you all. Sending lots of love, your upside down friend xx
ReplyDeleteMy thoughts are with you.xx
ReplyDelete